About r/lupus
This is a space for those Living with Lupus to Connect, Share Experiences, Build Support, and Create Community. Those who have other autoimmune conditions or loved ones of those with Lupus are welcome, with the loving reminder that this forum is for Lupus patients first. Respect our needs as much as we do our best to respect yours.
The community at a glance
r/lupus is a Subreddit for Disability and Chronic Conditions with roughly 59K members. It has been around since 2010. It has both a forum and a live chat communication style. On the Hive Index it ranks #7 in the Chronic Conditions communities list and #10 in the Disability communities list.
Roughly 11K members have joined in the past year. Popular discussion topics include Lupus, Benlysta, and Sun. Product recommendations often mention lupus, supplements, and socks.
Community Topics
Subreddit Analysis
via GummySearchMember growth over time
All time (yearly)
- 2013: 247 members
- 2014: 310 members
- 2015: 425 members
- 2016: 615 members
- 2017: 945 members
- 2018: 2K members
- 2019: 3K members
- 2020: 4K members
- 2021: 5K members
- 2022: 6K members
- 2024: 18K members
- 2025: 11K members
- 2026: 8K members
Past year (monthly)
- Nov: 917 members
- Dec: 870 members
- Jan: 924 members
- Feb: 776 members
- Mar: 871 members
- Apr: 905 members
- May: 995 members
- Jun: 1K members
- Jul: 991 members
- Aug: 805 members
- Sep: 795 members
- Oct: 72 members
Topics
- Lupus13 posts in the past month#113Lupus
- Benlysta3 posts in the past month#23Benlysta
- Sun3 posts in the past month#33Sun
- Symptoms2 posts in the past month#42Symptoms
- Flare2 posts in the past month#52Flare
Flair
- Advice18 posts in the past month
- Appearance tips?
- Is this just a really bad sore from Lupus or something else entirely?
- Extreme knee pain?
#118AdviceAppearance tips? · Is this just a really bad sore from Lupus or something else entirely? · Extreme knee pain? - Diagnosed Users Only17 posts in the past month
- I had a seizure for the first time
- Any non work from home full time workers here?
- How often do you get labs done, and are they covered/free?
#217Diagnosed Users OnlyI had a seizure for the first time · Any non work from home full time workers here? · How often do you get labs done, and are they covered/free? - Venting10 posts in the past month
- joint pain, this sucks
- I feel like I am gonna die soon.
- I am tired...
#310Ventingjoint pain, this sucks · I feel like I am gonna die soon. · I am tired... - General9 posts in the past month
- Rheumatologist: Your SLE has never presented as primary, Let’s talk about Sjogren’s (and the upcoming drugs!)
- Is lupus fatigue or am I being dramatic?
- eye/hair pain
#49GeneralRheumatologist: Your SLE has never presented as primary, Let’s talk about Sjogren’s (and the upcoming drugs!) · Is lupus fatigue or am I being dramatic? · eye/hair pain - Medicines9 posts in the past month
- Folic acid is goated
- Benlysta Auto Injectors
- Taking prednisone 20 mg for more than 2 weeks
#59MedicinesFolic acid is goated · Benlysta Auto Injectors · Taking prednisone 20 mg for more than 2 weeks
Product recommendations
- lupus25 posts in the past month
- I just got in a relationship with a girl who is diagnosed with SLE- How can I best support her?
- Best Lupus Charity's
- what is the best type of doctor to see about testing for lupus?
#125lupusI just got in a relationship with a girl who is diagnosed with SLE- How can I best support her? · Best Lupus Charity's · what is the best type of doctor to see about testing for lupus? - supplements3 posts in the past month
- Best supplement stack for inflammation induced by lupus?
- Best supplements
- What sort of turmeric supplements do y’all recommend?
#23supplementsBest supplement stack for inflammation induced by lupus? · Best supplements · What sort of turmeric supplements do y’all recommend? - socks2 posts in the past month
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
#32socksCan anyone recommend good socks that are tight/compressive on the foot and ankle? · Can anyone recommend good socks that are tight/compressive on the foot and ankle? - insect repellents1 post in the past month
- I hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
#41insect repellentsI hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
Community Reviews
Frequently asked questions
- Who is r/lupus for?
- Best for Disability and Chronic Conditions enthusiasts looking for a Reddit-based community with forum discussion, live chat.
- Is r/lupus free to join?
- This listing is not marked as paid-only. Access rules and any fees are decided by the community.
- How many members does r/lupus have?
- Roughly 59K members, based on figures reported by the community or its host. Member counts are approximate and change over time.
- What platform is r/lupus on?
- r/lupus runs on Reddit. Reddit communities (or "subreddits") are forum-based groups on the popular social news aggregation, web content rating, and discussion website Reddit. Reddit is commonly known as "the front page of the internet". Users submit content to the site such as links, text posts, and images, which are then voted up or down and discussed by other members. From investing Reddit communities, to professional ones, to ones just for laughs, you're likely to find a community for you on Reddit.
- What topics does r/lupus cover?
- On the Hive Index, r/lupus is organized under Disability, Chronic Conditions.
- How do I join r/lupus?
- You can join r/lupus by clicking this link, or pressing the "Go to community" button above.
- What are the Disability communities like?
- Communities for people living with physical, cognitive, and sensory disabilities, as well as caregivers and advocates. Reddit has some of the most active spaces, organized around both general disability discussion and specific conditions. Topics range from navigating daily life and accessibility to sharing resources, venting, and connecting with others who get it.
Monthly Stats
- 14
- Views /mo (+56%)
- 13
- Visitors /mo (+44%)
- 0
- Referrals /mo
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