About r/lupus
This is a space for those Living with Lupus to Connect, Share Experiences, Build Support, and Create Community. Those who have other autoimmune conditions or loved ones of those with Lupus are welcome, with the loving reminder that this forum is for Lupus patients first. Respect our needs as much as we do our best to respect yours.
The community at a glance
r/lupus is a Subreddit for Disability and Chronic Conditions with roughly 58K members. It has been around since 2010. It has both a forum and a live chat communication style. On the Hive Index it ranks #4 in the Disability communities list and #6 in the Chronic Conditions communities list.
Roughly 11K members have joined in the past year. Popular discussion topics include Lupus, Benlysta, and Sun. Common discussion themes are Pain & Anger and Advice Requests. Product recommendations often mention lupus, supplements, and socks.
Community Topics
Subreddit Analysis
via GummySearchMember growth over time
All time (yearly)
- 2013: 247 members
- 2014: 310 members
- 2015: 425 members
- 2016: 615 members
- 2017: 945 members
- 2018: 2K members
- 2019: 3K members
- 2020: 4K members
- 2021: 5K members
- 2022: 6K members
- 2024: 18K members
- 2025: 11K members
- 2026: 8K members
Past year (monthly)
- Oct: 661 members
- Nov: 917 members
- Dec: 870 members
- Jan: 924 members
- Feb: 776 members
- Mar: 871 members
- Apr: 905 members
- May: 995 members
- Jun: 1K members
- Jul: 991 members
- Aug: 805 members
- Sep: 220 members
Themes
- Pain & Anger5 posts in the past month
- Am I unreasonable for being annoyed when my friends act like they forgot about my situation?
- Feeling of anger..
- Struggling with the hair loss
#15Pain & AngerAm I unreasonable for being annoyed when my friends act like they forgot about my situation? · Feeling of anger.. · Struggling with the hair loss - Advice Requests2 posts in the past month
- what helps with sun sensitivity
- How can I get back to my normal routine?
#22Advice Requestswhat helps with sun sensitivity · How can I get back to my normal routine?
Topics
- Lupus13 posts in the past month
- Zepbound and lupus
- Lupus and Costochondritis
- sle + lupus nephritis wasn’t enough, apparently my shoulder needed its own plot twist 😭
#113LupusZepbound and lupus · Lupus and Costochondritis · sle + lupus nephritis wasn’t enough, apparently my shoulder needed its own plot twist 😭 - Benlysta3 posts in the past month#23Benlysta
- Sun3 posts in the past month
- what helps with sun sensitivity
#33Sunwhat helps with sun sensitivity - Symptoms2 posts in the past month#42Symptoms
- Flare2 posts in the past month#52Flare
Flair
- Diagnosed Users Only42 posts in the past month
- Blessing in disguise
- Struggling to get to sleep and struggling to wake up
- Lupus and Alcohol
#142Diagnosed Users OnlyBlessing in disguise · Struggling to get to sleep and struggling to wake up · Lupus and Alcohol - Venting40 posts in the past month
- “just go outside and exercise!”
- What a Ridiculous Disease
- I had to stop following lupus creators
#240Venting“just go outside and exercise!” · What a Ridiculous Disease · I had to stop following lupus creators - General28 posts in the past month
- Zepbound and lupus
- Went on vacation w Lupus and had a great time
- Lupus hair growth
#328GeneralZepbound and lupus · Went on vacation w Lupus and had a great time · Lupus hair growth - Advice24 posts in the past month
- Is being hot and tired all the time part of having lupus?
- Is this part of Lupus?
- hydroxychloroquine changed my life!
#424AdviceIs being hot and tired all the time part of having lupus? · Is this part of Lupus? · hydroxychloroquine changed my life! - Life tips12 posts in the past month
- Learn from my mistakes…
- 5 things that are worth your money (Lupus Edition)
- what helps with sun sensitivity
#512Life tipsLearn from my mistakes… · 5 things that are worth your money (Lupus Edition) · what helps with sun sensitivity
Product recommendations
- lupus25 posts in the past month
- I just got in a relationship with a girl who is diagnosed with SLE- How can I best support her?
- Best Lupus Charity's
- what is the best type of doctor to see about testing for lupus?
#125lupusI just got in a relationship with a girl who is diagnosed with SLE- How can I best support her? · Best Lupus Charity's · what is the best type of doctor to see about testing for lupus? - supplements3 posts in the past month
- Best supplement stack for inflammation induced by lupus?
- Best supplements
- What sort of turmeric supplements do y’all recommend?
#23supplementsBest supplement stack for inflammation induced by lupus? · Best supplements · What sort of turmeric supplements do y’all recommend? - socks2 posts in the past month
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
#32socksCan anyone recommend good socks that are tight/compressive on the foot and ankle? · Can anyone recommend good socks that are tight/compressive on the foot and ankle? - insect repellents1 post in the past month
- I hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
#41insect repellentsI hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
Community Reviews
Frequently asked questions
- Who is r/lupus for?
- Best for Disability and Chronic Conditions enthusiasts looking for a Reddit-based community with forum discussion, live chat.
- Is r/lupus free to join?
- This listing is not marked as paid-only. Access rules and any fees are decided by the community.
- How many members does r/lupus have?
- Roughly 58K members, based on figures reported by the community or its host. Member counts are approximate and change over time.
- What platform is r/lupus on?
- r/lupus runs on Reddit. Reddit communities (or "subreddits") are forum-based groups on the popular social news aggregation, web content rating, and discussion website Reddit. Reddit is commonly known as "the front page of the internet". Users submit content to the site such as links, text posts, and images, which are then voted up or down and discussed by other members. From investing Reddit communities, to professional ones, to ones just for laughs, you're likely to find a community for you on Reddit.
- What topics does r/lupus cover?
- On the Hive Index, r/lupus is organized under Disability, Chronic Conditions.
- How do I join r/lupus?
- You can join r/lupus by clicking this link, or pressing the "Go to community" button above.
- What are the Disability communities like?
- Communities for people living with physical, cognitive, and sensory disabilities, as well as caregivers and advocates. Reddit has some of the most active spaces, organized around both general disability discussion and specific conditions. Topics range from navigating daily life and accessibility to sharing resources, venting, and connecting with others who get it.
Monthly Stats
- 12
- Views /mo (+20%)
- 12
- Visitors /mo (+50%)
- 0
- Referrals /mo
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