About r/lupus
This is a space for those Living with Lupus to Connect, Share Experiences, Build Support, and Create Community. Those who have other autoimmune conditions or loved ones of those with Lupus are welcome, with the loving reminder that this forum is for Lupus patients first. Respect our needs as much as we do our best to respect yours.
The community at a glance
r/lupus is a Subreddit for Disability and Chronic Conditions with roughly 57K members. It has been around since 2010. It has both a forum and a live chat communication style. On the Hive Index it ranks #5 in the Chronic Conditions communities list and #5 in the Disability communities list.
Roughly 11K members have joined in the past year. Popular discussion topics include Lupus, Symptoms, and Flare. Product recommendations often mention lupus, supplements, and socks.
Community Topics
Subreddit Analysis
via GummySearchMember growth over time
All time (yearly)
- 2013: 247 members
- 2014: 310 members
- 2015: 425 members
- 2016: 615 members
- 2017: 945 members
- 2018: 2K members
- 2019: 3K members
- 2020: 4K members
- 2021: 5K members
- 2022: 6K members
- 2024: 18K members
- 2025: 11K members
- 2026: 7K members
Past year (monthly)
- Sep: 714 members
- Oct: 661 members
- Nov: 917 members
- Dec: 870 members
- Jan: 924 members
- Feb: 776 members
- Mar: 871 members
- Apr: 905 members
- May: 995 members
- Jun: 1K members
- Jul: 991 members
- Aug: 19 members
Topics
- Lupus36 posts in the past month#136Lupus
- Symptoms20 posts in the past month#220Symptoms
- Flare8 posts in the past month#38Flare
- Diagnosis8 posts in the past month#48Diagnosis
- Pain7 posts in the past month#57Pain
Flair
- Diagnosed Users Only43 posts in the past month
- Blessing in disguise
- Struggling to get to sleep and struggling to wake up
- i need to be told it's not like this forever
#143Diagnosed Users OnlyBlessing in disguise · Struggling to get to sleep and struggling to wake up · i need to be told it's not like this forever - General39 posts in the past month
- Is anyone else treated like a rare exotic animal by doctors because you have this rare disease Lupus? Every doc of the hospital entered my room to glance at me… it was so horrible
- Lupus hair growth
- Transplant update
#239GeneralIs anyone else treated like a rare exotic animal by doctors because you have this rare disease Lupus? Every doc of the hospital entered my room to glance at me… it was so horrible · Lupus hair growth · Transplant update - Advice34 posts in the past month
- Summer is killing me
- Medical trauma has really altered me as a person
- Advice and Resources for the (Newly) Diagnosed
#334AdviceSummer is killing me · Medical trauma has really altered me as a person · Advice and Resources for the (Newly) Diagnosed - Venting17 posts in the past month
- I am so EXHAUSTED all the time
- The joy of developing another autoimmune disease
- Once again, no, it was never my weight.
#417VentingI am so EXHAUSTED all the time · The joy of developing another autoimmune disease · Once again, no, it was never my weight. - Newly Diagnosed13 posts in the past month
- feels like my life is over at 22
- Do you ever loose this grief of who you were before your diagnosis?
- Omg the HCQ is finally working!!!
#513Newly Diagnosedfeels like my life is over at 22 · Do you ever loose this grief of who you were before your diagnosis? · Omg the HCQ is finally working!!!
Product recommendations
- lupus25 posts in the past month
- I just got in a relationship with a girl who is diagnosed with SLE- How can I best support her?
- Best Lupus Charity's
- what is the best type of doctor to see about testing for lupus?
#125lupusI just got in a relationship with a girl who is diagnosed with SLE- How can I best support her? · Best Lupus Charity's · what is the best type of doctor to see about testing for lupus? - supplements3 posts in the past month
- Best supplement stack for inflammation induced by lupus?
- Best supplements
- What sort of turmeric supplements do y’all recommend?
#23supplementsBest supplement stack for inflammation induced by lupus? · Best supplements · What sort of turmeric supplements do y’all recommend? - socks2 posts in the past month
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
- Can anyone recommend good socks that are tight/compressive on the foot and ankle?
#32socksCan anyone recommend good socks that are tight/compressive on the foot and ankle? · Can anyone recommend good socks that are tight/compressive on the foot and ankle? - insect repellents1 post in the past month
- I hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
#41insect repellentsI hope everyone is taking care of themselves on this World Lupus Day. Was wondering if anyone here has some favorite effective insect/mosquito repellents they can recommend for preventing any chance of a heightened reaction against a bite?
Community Reviews
Frequently asked questions
- Who is r/lupus for?
- Best for Disability and Chronic Conditions enthusiasts looking for a Reddit-based community with forum discussion, live chat.
- Is r/lupus free to join?
- This listing is not marked as paid-only. Access rules and any fees are decided by the community.
- How many members does r/lupus have?
- Roughly 57K members, based on figures reported by the community or its host. Member counts are approximate and change over time.
- What platform is r/lupus on?
- r/lupus runs on Reddit. Reddit communities (or "subreddits") are forum-based groups on the popular social news aggregation, web content rating, and discussion website Reddit. Reddit is commonly known as "the front page of the internet". Users submit content to the site such as links, text posts, and images, which are then voted up or down and discussed by other members. From investing Reddit communities, to professional ones, to ones just for laughs, you're likely to find a community for you on Reddit.
- What topics does r/lupus cover?
- On the Hive Index, r/lupus is organized under Disability, Chronic Conditions.
- How do I join r/lupus?
- You can join r/lupus by clicking this link, or pressing the "Go to community" button above.
- What are the Disability communities like?
- Communities for people living with physical, cognitive, and sensory disabilities, as well as caregivers and advocates. Reddit has some of the most active spaces, organized around both general disability discussion and specific conditions. Topics range from navigating daily life and accessibility to sharing resources, venting, and connecting with others who get it.
Monthly Stats
- 9
- Views /mo (+350%)
- 7
- Visitors /mo (+250%)
- 0
- Referrals /mo
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